Cystic Fibrosis Charities & Support

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International

The Breathing Room:  Support for the Cystic Fibrosis Community 3 star
CysticFibrosis.com - an internet community and unparalleled CF information resource 3 star
Cystic Fibrosis Community - active message board and chat room for caregivers and Cystic Fibrosis sufferers
Cystic Fibrosis Web Ring
IACFA - International organisation for adults with CF
International Cystic Fibrosis Support Group - dissemination of information, support, discussion forum, contacts
Sharktank.org - dedicated to finding a cure to CF through extensive research, critical analysis, and the exchange of ideas (outstanding design)

-A-
Africa

Asia

Australia
Cystic Fibrosis New South Wales
Cystic Fibrosis Queensland
Cystic Fibrosis South Australia
Cystic Fibrosis Victoria
Cystic Fibrosis Western Australia
Cystic Fibrosis Tasmania
Royal Children's Cystic Fibrosis Research Trust - outlines research initiatives, fundraising, news, and contact details, Parkville

Austria

- B -
Belgium
Association Belge de Lutte contre la Mucovisidose
Belgian Cystic Fibrosis Association (Flemish & French) 2 star

Bermuda

Brazil

- C -
Canada
Adult CF Committee of Quebec (French)
Association Quebecoise de Fibrose Kystique, Canada, (French) 2 star
Canadian Cystic Fibrosis Foundation - information for people with CF, parents and caregivers
Canadian Cystic Fibrosis Foundation local chapters

China

Croatia

Czech Republic

- D -
Denmark
Landsforeningen til Bekæmpelse af Cystisk Fibrose, Danish CF Association

- E -
Eastern Europe

Eire
Cystic Fibrosis Association of Ireland

Europe

- F -
Finland

France
Mucone Xion - French website where you can share information about living with Cystic Fibrosis
S.O.S. Mucoviscidose - French CF National Association

- G -
Germany
German CF Foundation - CF-Selbsthilfe Bundesverband e.V. (German) 1 star
German Cystic Fibrosis Association (Mukoviszidose e.V.)
Mukoviszidose e.V. - German CF Association 2 star
Mukoland - my life with CF, treatment, family, sports, and German mailing list

Greece

- H -
Hong Kong

- I -
Iceland

India

Ireland
Cystic Fibrosis Association of Ireland

Israel

Italy

- J -
Japan

- K -
Korea, South

- L -
Luxembourg

- M -
Mexico

Middle East


- N -
Netherlands
Cystic Fibrosis Worldwide, Netherlands 1 star
Nederlandse Cystic Fibrosis Stichting - Dutch CF Foundation (English & Dutch)

New Zealand
Cystic Fibrosis Association of New Zealand - Support for people with CF with information about the disease

Norway
The Cystic Fibrosis Trust

- P -
Pakistan

Poland

Portugal

- R -
Russia

- S -
Saudi Arabia

Singapore

South Africa

South & Central America

South Korea

Spain
Cystic Fibrosis Spanish Federation - Federacion Española contra la Fibrosis Quistica (English, Spanish, & German)
la Fibrosis Quistica - Asociación Madrileña Contra la Fibrosis Quística

Sweden
RFCF, Riksförbundet Cystisk Fibros

Switzerland

- T -
Taiwan

Thailand

Turkey

- U -
Ukraine

United Kingdom
CaFamily, UK
Cystic Fibrosis Holiday Fund for children - NR
Cystic Fibrosis Trust, UK - research, fundraising, medical explanations and more
CF sponsored walk through Snowdonia - Please sponsor Ross Kempson and his brother as they climb their way through Snowdonia for CF
CF Dream Holidays - charity providing respite holidays for CF Children and families
Salvay Healthcare UK CysticFibrosis.co.uk - excellent support site with useful source of information for cystic fibrosis patients, parents, doctors and carers


United States

State Hyperlist
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National

Charlotte's Angels - monthly events to raise money for the Cystic Fibrosis Foundation
Cystic Fibrosis Foundation - extensive information and resources including clinical trials, publications and low cost medication
CysticFibrosis.com - an internet community and unparalleled CF information resource 3 star
Cystic Fibrosis Medicine - free information to patients & professionals concerned with the treatment of cystic fibrosis
CF Parents - Useful network for those US parents newly initiated into the world of Cystic Fibrosis
Cystic Fibrosis Research Center - news, events, chat rooms, support, information and question & answers about this disease
Cystic Fibrosis Resource Center - support community with books, medical news, articles and information, links, message boards
Health Boards Cystic Fibrosis - Forum for support, and for discussion of information, concerns, and treatment options
Lungs for Brooke - Friends and family of Brooke Butner are asking for your help in raising money with useful information
MyCysticFibrosis - Log on for Living With Cystic Fibrosis: personal management tools, health updates, articles, & personal support from on-site specialists
National Cystic Fibrosis Awareness Committee - serving to advance the public's awareness of Cystic Fibrosis
The National Information Center for Children and Youth with Disabilities 2 star
The National Women's Health Information Center 2 star

Alabama

Alaska
Iditarod 2003, Mush On For Cystic Fibrosis - Tim and Lori Layne are running their dog sled team 1,150 miles from Anchorage to Nome to raise money for CF

Arizona

Arkansas

California
Cystic Fibrosis Medicine - free information to patients & professionals concerned with the treatment of cystic fibrosis
Cystic Fibrosis Research Inc - mission is to fund Cystic Fibrosis research and to offer educational and support programs
Milan Foundation - created in the name of Milan Brown. Calendar, stories, poems, and donations, Beverley Hills
Special Child: For Parents and Caregivers of Children with Special Needs, Santa Clarita

Colorado

Connecticut

Delaware

Florida
Reach For The Stars Foundation helping to aid and educate all those affected by Cystic Fibrosis, Bay Harbor Islands
Second Wind Lung Transplant Association - providing support, love, advocacy, education, information and guidance, Clearwater
Sunny Shores Sea Camp - summer camp for kids with Cystic Fibrosis in the Florida Keys staffed by volunteers

Georgia
Camp Wak-n-Hak - week's overnight camping for children with CF with programming and medical care included, Camp Twin Lakes, Rutledge
Reaching Out Foundation - programs, a personal story, general information, and how to donate
Wish for Wendy 2002 - softball tournament benefiting CF in honor of Wendy Carol Lipman, Atlanta

Hawaii

Idaho

Illinois

Indiana
A Message from above - dedicated to the memory of Heather Kay Mattke and Holly Kay (Mattke) Wheelock

Iowa

Kansas
Richard Shannon Lung Transplant Fund - a fund raiser is ongoing to pay for expenses beyond insurance provision

Kentucky

Louisiana

Maine

Maryland
Cystic Fibrosis Research Center - news, events, chat rooms, support, information and question & answers about this disease
IRRI SHARK's Page - The "65 roses" story

Massachusetts
Federation for Children with Special Needs NR

Michigan
Michigan Pulmonary Disease Inc - organization dedicated to enhancing lives of children and adults with Cystic Fibrosis

Minnesota

Mississippi

Missouri
Family Relief Fund - provides financial assistance to families which have children with CF, Lebanon
Jake's Cystic Fibrosis Page - a personal web site with newsletter and chat
Official Site for CFF Jack Buck Book Event - Jack Buck, A Collection of Poems and Stories, with all proceeds going directly to Cystic Fibrosis Foundation

Montana

Nebraska

Nevada

New Hampshire

New Jersey
The New Jersey Organization of Cystic Fibrosis - New Jersey State charitable organization devoted to the battle against Cystic Fibrosis

New Mexico

New York
Corrine's Pride a 5K run for Cystic Fibrosis - annual 5K race inspired by Corrine who was diagnosed with CF, Staten Island
Lungs for Life - providing financial assistance to cystic fibrosis and lung transplant patients, Rochester

North Carolina

North Dakota

Ohio

Oklahoma
The Spirit of Lo - engaging account about CF & the effects on an ordinary family

Oregon

Pennsylvania
Living with Cystic Fibrosis - quality community site by computer specialist with CF, with advice on hospitalizations, relationships, and growing up with CF
Pennsylvania Cystic Fibrosis. Inc. - funding for Pennsylvania families affected by CF and for most promising US CF research projects (restricted)

Rhode Island

South Carolina

South Dakota

Tennessee
Cindy's Friends - Walking for Cystic Fibrosis, Working for Cure Found - Information, progress, and fundraising effort, Nashville
Sevier County Team CF - formed in 2000 by Jim Deanda and Barbara Gray, CF parents, who last year raised over $40,000 for CF research

Texas
Camp Funshine Home Page - free one-week summer camp for CF kids, seven or older, San Antonio

Utah
Utah Valley Institute of Cystic Fibrosis - promoting independent research to ameliorate cystic fibrosis

Vermont

Virginia

Washington
University Place Professional Firefighters Union Local 2105 Fund-Raiser - sponsor and active fund-raiser for the Cystic Fibrosis Foundation with two annual events

Washington, D.C.
The National Information Center for Children and Youth with Disabilities 2 star

West Virginia

Wisconsin
How to handle living with Cystic Fibrosis - a personal community site of note with medical issues, tips and advice

Wyoming


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